Jenna Ezell Raulerson, MOMS for Sight, Inc. Jacksonville, FL
Jenna Raulerson has a son, Maverick, with x-linked juvenile Retinoschisis. Maverick was 6 years old at the time of his diagnosis in 2020. Since learning of Maverick’s diagnosis, Jenna has made it her mission to be as educated as possible on XLRS, stay up-to-date on research initiatives and be involved in groups such as Foundation Fighting Blindness and Moms For Sight. She believes that her son will see a treatment or a cure in his lifetime. Taking the advice of his doctor, she allows Maverick to “do anything and everything he can until one day he may say that he can’t.” Maverick is active and thriving. He loves to fish, golf, play baseball and explore the outdoors. As a parent with a child with XLRS, Jenna strives to make sure her son never feels limited. It is her goal to give him every resource he needs to follow his dreams and believes that every child, visually impaired or not, deserves that same opportunity! Jenna also has another son who is not affected by XLRS. As a family, they love to be outside, work in the garden, attend sporting events and watch movies.