Jennifer Crowley, MOMS for Sight, Inc., Mahomet, IL
Jen has two sons affected with x-linked juvenile retinoschisis. She knows that the faith her family has will get them through all of the tough times and that all of her children will live fulfilled lives. There are still hard times. She wants her sons to play sports, to drive cars, and to be happy. Her oldest son, Noah, has worse vision than her youngest son, Colby which will make a driver's license questionable. Colby experienced a hemorrhage, common to this disease, when he was in first grade. This event made it clear that the family would need to do what they can to protect their sons' vision. Like all moms, Jen fights for her children and wants a cure for them. Her daughter Taylor might also be a carrier. So, a cure needs to come soon. There is no need for this disease to affect the next generation in Jen's family!