Last year with an AMAZING turn out of love and support, we were able to donate over $25,000 to Foundation Fighting Blindness on behalf of the #seelikemav Golf Tournament.
- All team spots are FULL! Thank you for your support!!
- March 4, 2023
- Eagle Harbor Golf Club
- Lunch and Registration 11 am
- Clinic on the driving range with 2017 World Long Drive Champion, Justin James 12:15 pm
- Shotgun start 1 pm
Why a golf tournament?
For us, this is more than just a golf tournament. In January 2020, our oldest son Maverick, who was 6 at the time, was diagnosed with a retinal disease known as X-linked juvenile retinoschisis. This is a rare, genetic retinal disease that affects around 35,000 people in the United States and causes progressive vision loss through adolescence.
During what was supposed to be a routine appointment with his pediatrician, Maverick flunked the eye chart which resulted in a series of appointments leading us to his diagnosis within the week. In an instant, our healthy child, who hardly ever ran a fever, was given the label of “disabled” and “visually impaired”. We were told that Maverick may never drive a car, or do many other things that adolescents and teenagers look forward to, and that he could become legally blind by the time he was an adult. As parents, we felt helpless as there was absolutely nothing we could do to change this outcome.
There is currently no treatment, no procedure, no medicine and no quick fix like glasses, available for those with inherited retinal diseases like the one Maverick has. After researching different ways we could make his situation better, we were connected with the Foundation Fighting Blindness, an organization whose mission is to find treatments, preventions, and cures for blinding diseases like X-linked juvenile retinoschisis.
Not only is the Foundation driving sight-saving research, but more importantly, they have given our family and families like ours, hope. Hope that one day we will not have to tell our son he cannot drive like the rest of his friends or that he cannot do that job that requires 20-20 vision. It gives us hope that there is a cure in the near future.
Since he was able to walk, Maverick has been playing golf and has recently become involved in the PGA Junior League at Eagle Harbor Golf Club. We love this sport for him for many reasons, one of them being that with the help of a great caddy, it can be a life-long sport, no matter what happens with his vision. It also teaches him independence, decision making and how to pick himself up after a failure.
Last year with an AMAZING turn out of love and support, we were able to donate over $25,000 to Foundation Fighting Blindness on behalf of the #seelikemav Golf Tournament. Planning this tournament to support the Foundation Fighting Blindness has been a natural fit for our family to help move the mission of the Foundation forward. We would love to have you join us and drive groundbreaking research, all while creating a tournament that participants can look forward to for many years to come.
During what was supposed to be a routine appointment with his pediatrician, Maverick flunked the eye chart which resulted in a series of appointments leading us to his diagnosis within the week. In an instant, our healthy child, who hardly ever ran a fever, was given the label of “disabled” and “visually impaired”. We were told that Maverick may never drive a car, or do many other things that adolescents and teenagers look forward to, and that he could become legally blind by the time he was an adult. As parents, we felt helpless as there was absolutely nothing we could do to change this outcome.
There is currently no treatment, no procedure, no medicine and no quick fix like glasses, available for those with inherited retinal diseases like the one Maverick has. After researching different ways we could make his situation better, we were connected with the Foundation Fighting Blindness, an organization whose mission is to find treatments, preventions, and cures for blinding diseases like X-linked juvenile retinoschisis.
Not only is the Foundation driving sight-saving research, but more importantly, they have given our family and families like ours, hope. Hope that one day we will not have to tell our son he cannot drive like the rest of his friends or that he cannot do that job that requires 20-20 vision. It gives us hope that there is a cure in the near future.
Since he was able to walk, Maverick has been playing golf and has recently become involved in the PGA Junior League at Eagle Harbor Golf Club. We love this sport for him for many reasons, one of them being that with the help of a great caddy, it can be a life-long sport, no matter what happens with his vision. It also teaches him independence, decision making and how to pick himself up after a failure.
Last year with an AMAZING turn out of love and support, we were able to donate over $25,000 to Foundation Fighting Blindness on behalf of the #seelikemav Golf Tournament. Planning this tournament to support the Foundation Fighting Blindness has been a natural fit for our family to help move the mission of the Foundation forward. We would love to have you join us and drive groundbreaking research, all while creating a tournament that participants can look forward to for many years to come.